Finally recovering...plus something that really sucked.

Well, Logan has had a rough couple of months, but I am hopeful he is on the upswing now. He had a stomach bug that took him about 3 weeks to actually shake. He just seemed to feel really bad for the past few months. He has had more headaches, chest pain, fatigue, and just not feeling great. He is no longer taking his medication that was supposed to reduce his headaches. It did nothing to reduce the frequency. He did go a long time without one getting really bad, but the side effects did not balance the amount it seemed to help. We are hopeful that stopping this will be helpful. We also have figured out that he has been teething. This week we noticed three molars and a new front bottom tooth are all emerging from his gums. That also helps explain many of his troubles lately. So, again, we are hopeful that he is finally recovering and will be feeling better a little more consistently. (I started writing this several days ago, so hopefully that will explain why it is like two entries in one).

And, on to the part that sucked... Logan had chemo today, and it was a scheduled spinal tap/chemo day. We arrived at 8, nice and early since he is not allowed to eat before. They accessed his port with no trouble, but it would not give blood return. This has been an ongoing issue over the past several months. Last month they left the clot busting medicine in the port over night and we had to go back the next day. Let me tell you, Logan did not like leaving the needle in over night. He has not had to sleep with it accessed since his first admission almost 3 years ago. So, today, they were able to do his spinal tap, but could not give the regular chemo without knowing for sure that the port was working fine. We waited for his IV to finish, and still nothing. So, they put in the medicine that is supposed to clear it out, but still no results. They were able to fit us in for an appointment in radiology, so they did an x-ray showing that the port is flushing just fine, it will just not give return blood. So, they signed off on it and Logan was able to receive his chemo, and we finally left at 4pm. They said that as long as the port is accepting medications and fluids, it is fine to receive the chemo. Unfortunately this means he will have to have finger pokes for his blood draws from now on. But...he only has 5 months left. Five treatments. Almost there. 

Here he is wearing all of his beads of courage today while at the clinic. He was such a trooper today. No complaints, and he just took everything in stride and was so brave. August 9th cannot come soon enough.