Today Logan started the next phase in his almost 3.5 years of treatment for his Leukemia. This phase is aptly named Delayed Intensification. Sounds fun, huh? They are actually warning us that this is worse than the first month, and we all remember that that month was rough. So, we start today with chemo in his spinal fluid, one of the same chemos in his port, a new chemo in his port (nicknamed "red death" doesn't that sound awesome?) and he goes back on the steroids (a higher dose than before). The good news is that the steroids are for 7 days, then 7 days off, then another steroids for 7 days. Then he is done with them for this phase. He could probably benefit from an increased appetite for a little while. Logan has lost weight over the past couple of months, that you can actually see the catheter that goes up from his port under the skin. Next week he has chemo on Tuesday, and Friday (none in the spinal fluid, yeah!). After that, he has chemo on the next Friday which is when he starts the second week of steroids. Then he has an off week, and has to pass his counts to start the second half of this phase. We are expecting him to have low counts due to the new medicine, and have planned to keep him more isolated even from daycare. I think he will miss his friends, but will enjoy being home with family including Grandma, Grandpa for a week, myself for a week over fall break, and Nene (and maybe Papa) for a week after that.
Here he is, ready to take on this next phase:
And here is with Iron Man checking in for chemo today:
We will be there for your week also (assuming that you want us). We thought that you might like a little time to yourself while your off.
ReplyDeleteIn our thoughts from Massachusetts. Sending hugs and tears for your darling.
ReplyDeletePeace,
Debbie