So far, so good

Logan had a really good day yesterday after chemo. He came home, ate lunch, took a nap and slept for about 1.5 hours. After that, we went to pick up his sister from school and take her to dance class. I was ever vigilant watching for signs of him not feeling well, but he was doing great and eating/drinking. One new thing we tried yesterday was giving him some caffeine per the doctor's suggestion. What good mother does not give their three year old Pepsi? Anyway, it was a treat for him and he drank a few ounces. I don't know if it was the caffeine or not, but he did not really get sick yesterday or today. So, possibly getting sick on previous spinal chemo days/weeks was related to headaches but he could not really tell us. Either way, we will go with it and keep it up next time. But the best part about that sentence is that he does not have another spinal for 3 months! Party! At least that is what it feels like.

Logan took his medicines fine last night, but did make it a point to tell me "I don't like that one." He was referring to the steroids, and I wanted to say "Me either, Dude, me either." It is pretty bitter when he takes it, so I have him take a drink immediately. Thankfully that one is only 5 days. But he was as super trooper, and didn't make a big stink about it. What was a challenge for him though is that he couldn't eat anything after dinner. He has turned into a bit of a grazer, and wants to eat after he leaves the table. But, unfortunately, the new rule is that he cannot eat anything after dinner or have any more milk (which has a bigger impact on him). That way, it is as long as possible before bed time when he takes his medicine.

I wanted to say thank you to everyone for not weighing in on our decision to give consent for Logan to be in the study. Making that decision was hard enough with the stress of possible implications, etc. that I could feel the stress as a physical feeling yesterday morning. We are doing what we feel is best, and appreciate that no one felt compelled to weigh in on one side or another. Not that I was expecting a lot of judgmental comments or anything, I just want everyone to know I couldn't take it. Our followers are so supportive and we appreciate all of the well wishes, prayers, positive thoughts, posts, reposts, and everything else. Much love to you all. Looking forward: Logan is attending a Beads of Courage event put on by my friend's daughter this weekend. It is her senior project and she is helping to raise money for Beads of Courage. Logan will be there with his beads on Sunday. Here is the link if anyone local wants to join us.