Well, unlike last month, Logan is feeling the full effects of steroid hunger this time around. He finished his last dose yesterday morning, and his cheeks are a little rounder and his belly too. Overall, he is not too cranky, but does get upset easier. Other than that, just plugging along. The clinic informed us that if we really wanted, we could get the methotrexate in liquid form from the pharmacy at the main Children's Hospital. We would have to fill it every other week, because it looses its efficacy. And we would either have to drive up to get it (about 30-40 minutes without traffic), or pay for shipping ($13 every two weeks). With all that said, he is taking it ok, so we will stay the current course.
I am also doing OK. It is strange how memories (flashbacks?) keep flooding my thoughts. It is hard to think about those rough first few days(months), and what all he went through. This mostly comes to me when I try to sleep, and the days are easier. We are trying to "celebrate" normalcy, and just be happy in everyday life. Thankful for all the things we can do this year that we could not do last year. Going to the pool, running to the store, and just having the energy to play. I know my emotions are close to the surface, because it does not take much for me to choke up a little. No major crying jags, but a kind act from a friend just makes me feel so grateful for what we have. My little man is not just surviving but he is thriving! Here he is blowing you a kiss:
so sweet he just melts your heart!
ReplyDeleteTeary here for you all. I am so happy he is doing so well with treatment. Blessings and Peace, Debbie
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