Tuesday, July 8, 2014

My birthday?

Logan has been doing well lately. He made it through his steroid week, and the week after. His appetite has definitely decreased over the past few days, and he even skips a few meals. We are not excited about that, but cannot force him to eat. I don't want eating to be a struggle, but do wish it wasn't one extreme or the other. He is either eating everything he can get his hands on or eating practically nothing. This seems to be the cycle most months: eat everything on the steroid week and for about 4-5 days after those are finished, then eating very little for about a week, then back to normal for about a week. Of course this has had exceptions. The month after his last spinal chemo, he didn't seem to eat much the whole month. Then the month after that, he never stopped eating. Now this month, he is back to the "typical" cycle. He goes in again for a spinal chemo in a couple of weeks.

Otherwise, things are good with the exception of a few headaches. Logan seems to get headaches with weather/barometric pressure changes ever since he started treatment last year. Not sure if it has to do with the spinal taps or what, but it does seem to be correlated to weather fronts coming through. The kids had a great time on Independence Day with the parade, block party and fireworks (see pictures below).

We are gearing up for Alexis' birthday on Saturday. This is exciting for the whole family, but is also a little confusing for Logan. His friend just had a birthday and party, and now his sister. Logan knows that his birthday is in August and not too far away, but thinks that we should be preparing for his birthday any day now. He has already requested that I make cinnamon rolls for breakfast on his birthday. And of course, he asks often, "are you making cinnamon rolls for my birthday today?" I did buy some mini cinnamon rolls at Costco last week, which seems to have satisfied him for awhile. He is excited about his sister's birthday though, and has even helped pick out a gift and card. She has asked for a charm bracelet, and he picked out a soccer ball charm for her (good thing she plays soccer!).

Both kids are excited to have Nene, Papa, Grandma and Grandpa in for the birthday celebration later this week.

Just for comparison, here is a picture of Logan last year on July 4th which happened to be his last day of his 28 day course of steroids. Notice same clothes, but they were tighter last year:
 What a difference a year makes!



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