Update

We have been keeping Logan busy this summer. He has had fun taking a trip to Oklahoma. He is learning to be a great swimmer. He has enjoyed time bowling. And he has also had fun at soccer camp (one down and one to go). Logan is also loving spending time with the puppies which are growing so much. We went to a party for our friend Delaney who is finally finished with her leukemia treatment, and saw Dr Tom there celebrating too. It was great to celebrate such a happy thing. We have had chemo (including one spinal) this summer, but he doesn't let it slow him down much. Overall we stay busy, but he may need some downtime in the afternoons. He enjoyed having fun at his sister's birthday party (I think he liked terrorizing her friends). Otherwise, no news is good news! (Sorry, pictures are in order from most recent to oldest)

Endings and beginnings

Logan had a great last day of preschool. Well, actually he kept telling me he was not having fun. When I asked him why, it was because he didn't want it to be his last day. What more can I ask? Below is a picture of him on that last day with his teachers.

Eric and I also recently had a meeting with his Kindergarten team including the teacher, principal and nurse. We came up with a plan for next year, and now we know more of what to expect and the procedures everyone will follow to keep him healthy. A big thanks to all of them,  as it helped relieve some of the anxiety.

We then had his last day of daycare. It was a bit emotional for us all. Now, I won't say I will miss writing a check each week (sorry Cathy), but we will miss it. Cathy is like a member of the family since we have known her over 7 years now. And she has certainly made us feel like a part of her family, sharing her family with us too. Unfortunately I was too scattered to get a picture with her that last day. Below I did include a picture of the custom sign from Arty Annie's that we gave her.

Now, on to the beginning of summer! We have lots of activities planned including swimming, bowling, movies and even a trip to visit family in Oklahoma. Busy, busy. The only bad part was that we had to start off the first week of summer with a chemo appointment. Logan was then on steroids and pretty needy. That was not good since we were also very busy, which cut down on his couch snuggling time with me. That did not go over well, but now that he is off of steroids that is getting better. We are just crossing our fingers for no major headaches. Other than that, his numbers were good, so the doctor's office was happy. No changes for now, and we go in at the end of the month for his spinal tap/chemo appointment.

Puppies!

We have been staying busy since the last posting. Logan had chemo and his numbers were down, but they didn't seem to worried. It was high enough to get chemo, but a little below where they prefer for their "therapeutic range." It could have had something to do with the fact he had been sick the week before. Since then, we have gotten two puppies, and Logan (as well as Alexis) are both thrilled beyond belief. The puppies keep us on our toes, and the kids are learning to keep everything picked up off of the floor unless they want it to become a puppy toy. The puppies are also pretty sweet and snuggly as well as intuitive. Logan had a migraine last week and another yesterday, and the puppies did not want to leave his side yesterday. They snuggled him when he rested on the couch. When we set him up in a chair with a blanket outside while the rest of us planted the vegetable garden, they planted themselves in his lap and at his feet and did not budge until we all went in. It was pretty sweet, and they even kept watching him when he would get up. It is safe to say that we are all tired of Logan getting these headaches that make him sick and bring him down.

Today is a new day though, and Logan is a different person from yesterday. He is eating, smiling, talking and happy to be feeling better. He is excited about his last week of school this week with celebrations. And next week is his last week at Cathy's for daycare. I will then be off for the summer and we will all be home before the school year starts, and Logan is in Kindergarten. I cannot believe he is ready for this new chapter in his life. I am excited and worried at the same time. I am meeting with his teacher and a few others to figure out what we can put in place next year to ensure he stays as healthy as possible. I am not sure what I can do to help this, so if anyone has any suggestions please share. For now, I will leave you with some pictures of the puppies:

Keeping busy

We have been staying busy with work, school, and clinic visits. At the last chemo appointment, they increased all of Logan's medications since he has grown. Because of this, they wanted to check his blood levels at the half-way point instead of waiting the full month. We went in last week and his numbers look good. They are considerably down from two weeks ago, but that is good. His ANC was 1900 which is closer to the range that they like to see. Overall, Logan has been feeling pretty good and he has not had any major headaches since finishing the steroids for the month. That was a relief.

Logan is still enjoying school, but does complain that it makes him tired. I think it is good he gets two afternoons a week at Cathy's for some extra rest, even though it leads to not going to sleep as quickly those nights. He has also been enjoying soccer on Saturdays again. Last weekend we went to a party given by Peach's Neet Feet all about spreading kindness through art and doing for others. It was a great afternoon and we even got to meet Peach. This is the same organization that painted Logan's custom shoes right after he was diagnosed. It really is a great non-profit with an amazing message.

I had Friday off, so I took the kids to see a movie. As you can tell, Logan is really excited about the new Avengers moving coming out this week:

Smoother sailing

I know it has been a long time since I updated, so sorry if this is long. Logan did get over the croup from last month, though it took longer than usual. He had chemo which went pretty smooth, but then had another migraine. It seems to be happening about a week after the steroids, but also coincides with a change in barometric pressure. That time, I took him into the clinic, but they did not have many answers for us. We are just keeping an eye on it and hoping it does not happen too often. Once he was healthy enough to go, he had a dentist appointment to fill a tooth. It seems that the chemo may be weakening his teeth a bit, but he was such a trooper for the whole process with no crying or anything. We then had Spring Break, and got to spend some relaxing time with family. It was great to get back to Oklahoma and see family, and it was the first time we have gone back since Logan's diagnosis.

After break, it was back to normal, and back to school. We had a fun Easter, and spent lots of time outside hunting for eggs and just playing in the nice weather. The kids had a ball! Logan had chemo last week with a spinal tap. He struggled in the morning with hunger and was really grumpy. After his labs came back, they found out that his blood sugar was pretty low, so that explained why he was not acting like himself. After he was able to eat some breakfast and drink some milk, he was back to his normal self. Logan has been really enjoying school, and even went in the afternoon after chemo. All of that combined with the steroids made for a needy, hungry Logan for the past week, but hopefully that will subside soon. The increased the dosage of all of his medications because he has grown, so hopefully that will not make his numbers drop too low. He continues to be all over the place with his lab results each month, so we do not really know what will happen over the next month. We have to check in next week for a lab draw, so they can just check on him and we will know then.

I want to say welcome to our many new followers on Facebook, we now have 535 likes! I do not know how the word is getting out about Logan, but we welcome you all and appreciate any additional support.

What is going on?!?

Hi friends! I welcome several new followers of Logan's journey as well as saying "I'm sorry" to the faithful followers since I have not updated lately. Things have been pretty crazy and this has been a rough week and a half. We are not sure, but think Logan had a migraine last week. He had a headache that just reduced him to screaming and he couldn't keep anything in his stomach. Then he woke up the next day and was perfectly fine. He ate, played and pretty much acted like normal. Then Logan had croup (again) last weekend, and he hasn't been able to shake it. It is better, and really isn't croup any longer. But, he still has a cough, runny nose, and has been throwing up the past couple of days. At first, we thought it was related to just the congestion and drainage or maybe taking medicine. He couldn't keep his Methotrexate down and ended up taking the 11.5 pills three times before he actually kept them down. That was a little more than traumatic for all involved. Then we thought maybe it was just the coughing. He does fine in the afternoons and evenings (until medicine time), so we thought maybe it was just that he did not feel great and didn't want to take the meds or something. We still do not know what is going on, but we certainly hope it gets better over the weekend. Anyway, it has been a week of ups and downs and little sleep.

Otherwise, we are hanging in there. We are thankful that he has not had any fevers, since this has kept him at home and out of the doctor's office and hospital. But, as you can tell by the picture, he has not been a very happy camper. He mostly wants to take it easy and snuggle on the couch. He has been pretty needy lately. The upside to that is that he becomes very complimentary (at least to me) when he is like this. Normally, he is a pretty sweet boy. But now, he is constantly telling he how pretty, beautiful, and sweet I am. He tells me how he loves me straight to his heart, and how he is going to keep me or choose me for his mom forever. I do not like that he is not feeling well which is leading to this, but I certainly cannot turn down such sweetness.

Prechemo update

Logan has been doing well and staying healthy this month. He has been enjoying his friends at daycare and school as well as family time. Here is a picture from preschool (sorry it is a little blurry) where he is "ice skating" and learning about winter. 

Health wise, Logan has fortunately stayed healthy so far despite being around kids at daycare, school, and even part of the family who have been/are sick. Hopefully this will hold out since he has chemo this week. I would like to know what his numbers truly are without being influenced by a cold/virus/anything. 

Logan's Avengers has gained quite a few followers lately, so we want to say "welcome!"  We appreciate you following and supporting Logan along his fight. If you would like to go back to the beginning of Logan's journey, you can click here and here. Thank you for joining us, and sharing Logan's story.