Holding steady

Logan is doing well and has had no more fevers since Sunday evening. We are thankful for that, but are also noticing changes in him since he stopped the steroids and medications from the last round and began this newest round. He had a lumbar puncture (spinal tap) last Friday with chemo being inserted into his spinal fluid. This is the same chemo med that he received two times in the first month. He also started a new oral chemo on Friday night called Mercaptopurine (aka 6MP). This pill is much larger than the steroids and therefore a little more difficult to crush and dissolve into some water and cherry syrup, but we are managing and he is taking it. He is definitely more tired overall, and his appetite is almost nonexistent. He eats a little and is drinking milk. With the new medication, he cannot eat either 2 hours before taking it or 1 hour after taking it. We thought this would be difficult since he has been drinking milk like crazy and had started eating a snack at bedtime. So far, it has not been an issue since he has not been eating dinner (maybe a few bites) and we are getting by with just juice at bedtime with the medication. Logan is losing weight, but not rapidly so I think it is mostly just coming off the steroids. He still has not lost his hair, and I cannot tell that it is coming out. I do not notice it on his pillow or in the drain after a bath and it still looks thick. I have also  noticed that he has strange breath. It's almost acidic smelling, but difficult to describe. I guess "chemical" is a good word to describe it, and maybe that is why he doesn't want to eat much. It is possible that everything he eats tastes like that. Logan does still like to play outside, and here he is dancing last night (can you guess that he loves his new Iron Man shirt and his PNF shoes):