Logan did well with his lumbar puncture and chemo today. He was not a happy camper that he could not eat or drink anything before though. We definitely had a cranky little man on our hands until they gave him the happy drugs. He breezed through the procedure like a champ and then proceeded to drink his milk and eat 3 little bags of goldfish crackers.
Then we met with the doctor since they finally have the results of the cytogenetics tests on the leukemia cells. When they did his first bone marrow biopsy, they sent it off for genetic testing to find out more detail regarding the leukemia cells. The results of this could impact treatment in a couple of ways. If the results show "more favorable" genetic markers then he might need less chemo. If the results show "less favorable" markers then it could impact treatment the other way and also impact prognosis. Well, Logan's results came back with what was called an Amplification of chromosome 21. Of course, this is a less favorable marker. In the words of the doctor: it is a more difficult leukemia to treat. Though he still seemed optimistic. He told us that they typical cure rate for standard risk Leukemia is somewhere around 91% with the standard treatment. With this amplification of chromosome 21, it lowers to 72% with the standard treatment, but when they give more intense chemotherapy they can get it back up into the typical cure rate range.
Needless to say, we were not excited about this news. It has been a hard couple of days. Logan is so tired and we can just tell he does not feel well. He threw up yesterday when I gave him his medicine, and when he cries it just breaks my heart. He has started telling me that the medicine is not making him feel better, so I guess he does not get the whole concept of delayed gratification. Though he is getting much better about taking the medicine today, so that part is getting easier.
Thanks to everyone for the outpouring of support, we appreciate all the thoughts, prayers, cards, gifts and offers of assistance.
Wanted you to know we are thinking about you.
ReplyDeleteJennifer, my heart is hurting for you. I can't imagine what this is like. I am praying for Logan, you, your family, and his medical team. I am asking for complete healing, rest, and peace of mind.
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