What is going on?!?

Hi friends! I welcome several new followers of Logan's journey as well as saying "I'm sorry" to the faithful followers since I have not updated lately. Things have been pretty crazy and this has been a rough week and a half. We are not sure, but think Logan had a migraine last week. He had a headache that just reduced him to screaming and he couldn't keep anything in his stomach. Then he woke up the next day and was perfectly fine. He ate, played and pretty much acted like normal. Then Logan had croup (again) last weekend, and he hasn't been able to shake it. It is better, and really isn't croup any longer. But, he still has a cough, runny nose, and has been throwing up the past couple of days. At first, we thought it was related to just the congestion and drainage or maybe taking medicine. He couldn't keep his Methotrexate down and ended up taking the 11.5 pills three times before he actually kept them down. That was a little more than traumatic for all involved. Then we thought maybe it was just the coughing. He does fine in the afternoons and evenings (until medicine time), so we thought maybe it was just that he did not feel great and didn't want to take the meds or something. We still do not know what is going on, but we certainly hope it gets better over the weekend. Anyway, it has been a week of ups and downs and little sleep.

Otherwise, we are hanging in there. We are thankful that he has not had any fevers, since this has kept him at home and out of the doctor's office and hospital. But, as you can tell by the picture, he has not been a very happy camper. He mostly wants to take it easy and snuggle on the couch. He has been pretty needy lately. The upside to that is that he becomes very complimentary (at least to me) when he is like this. Normally, he is a pretty sweet boy. But now, he is constantly telling he how pretty, beautiful, and sweet I am. He tells me how he loves me straight to his heart, and how he is going to keep me or choose me for his mom forever. I do not like that he is not feeling well which is leading to this, but I certainly cannot turn down such sweetness.

Prechemo update

Logan has been doing well and staying healthy this month. He has been enjoying his friends at daycare and school as well as family time. Here is a picture from preschool (sorry it is a little blurry) where he is "ice skating" and learning about winter. 

Health wise, Logan has fortunately stayed healthy so far despite being around kids at daycare, school, and even part of the family who have been/are sick. Hopefully this will hold out since he has chemo this week. I would like to know what his numbers truly are without being influenced by a cold/virus/anything. 

Logan's Avengers has gained quite a few followers lately, so we want to say "welcome!"  We appreciate you following and supporting Logan along his fight. If you would like to go back to the beginning of Logan's journey, you can click here and here. Thank you for joining us, and sharing Logan's story.

This is amazing!

You know that feeling when you kid has been healthy for 6 weeks and it seems like a miracle? Well, some of you do, but most of you do not (thankfully). Logan has stayed healthy, and I feel like I am just waiting for him to start coughing or sneezing. Anyway, we are very thankful for this and it has allowed us to just live (mostly) normal lives recently. Logan has been just doing normal things like running errands, going to daycare and school, playing outside, riding his bike and helping around the house. He even helped us paint a bathroom this weekend, which translates to helping get paint everywhere. But he had fun and did a great job. We go in this week for labs, but otherwise just plan on having a great week.

Chemo day

Logan was a super trooper at chemo. He had a rough morning since he did not get to eat before we went for his spinal tap. He was a bit cranky and pouting, but we made it there. He did OK with his port access and sedation then we left the room for his spinal tap. Now, last time, Logan did great and just watched the TV during the tap. This time, however, I could hear him yelling when I was pacing down the hall and around the corner. After that, he took the rest like a champ even eating a pretty good breakfast afterward. Throughout the rest of the day, he wouldn't let me out of his sight, but overall did well. He was tired, so took a nap (see picture). Other than not being overly excited that he has some extra meds to take, he is doing well. We finally got a clear picture of his numbers since he has not been sick lately, and they are certainly lower. His ANC is 660 which is a bit low, so they want us to go in and do a check in two weeks. Hopefully it will not go down any further, because that would mean that he needs isolation. They do not expect the numbers to go down, instead they feel that they will level out into the therapeutic range. Hopefully that will be true.

New experiences

Logan has had a great week. He went back to Cathy's daycare after the winter break, and he started school for a couple of afternoons this week. He loved school including meeting new friends and playing with new toys. He was actually pretty sad when it was time to leave. With all that being said, it was also tiring for him. He had no trouble falling asleep in the evening and actually had a hard time waking up in the morning. He even wanted his nap to be a little longer when he was at daycare the next day. On Thursday after school, he fell asleep on the way to pick up his sister. It will take some getting used to for him, but I think it will help build up his stamina. We also found out this week after his Kindergarten enrollment, that he has a spot in the full day class for next year. This is good news! Here is a picture of Logan sitting at circle time on his first day of preschool.

Coming up this next week, Logan has school and also chemo with a spinal tap. Hopefully he stays this healthy, and is able to keep on moving after chemo. He did really well after his last spinal, and we know he is such a trooper.

Wrapped up

Well, winter break is all wrapped up and we all went back to reality this week. I am back at work, Alexis back at school and Logan is back at Cathy's. We had fun playing in the snow and going sledding for the first time. He is certainly a dare devil, and would rocket down the hill head first with no fear. It was great to watch him having fun and just being a normal 4 year old. We had a great time just hanging around the house or running errands. We had fun with friends both new and old and a trip to the Wings Over the Rockies museum where Logan saw a replica of an X-Wing fighter complete with R2-D2 which was a high point.

Logan has been feeling pretty good even though his appetite has been down. I am looking forward to a week of good health before chemo with a spinal tap next week. There are a lot of germs going around, and I hope he steers clear of them as much as possible. We would like to get an accurate blood count without it being impacted by fighting off illness.

Loving winter break

We have been having a busy and fun winter break. We have been swimming, taking treats to the doctor's office, enjoying Christmas and family, and just hanging around. Logan had asked for a "Blue Avenger's Bike" from Santa, and Santa delivered. Thankfully, Logan was able to ride his bike in the morning outside before it started snowing on Christmas. That is good, because it has snowed more and has been so cold that the snow is not melting. It is great to see Logan feeling better this year and enjoying Christmas and everything that it entails.

The antibiotics that they gave Logan at his last clinic visit seem to be doing the trick. His nose is no longer runny, his cough is gone, and he has not been complaining of headaches. Yay! Maybe it was just a chronic sinus infection, which is a relief. It was no fun with Logan being sick over and over again.

Other news is that Logan will be starting preschool in the afternoons at one of my preschool classrooms. I think he will thrive in this environment, but it will also be tiring for him. Maybe this will help build up his endurance and gear up for Kindergarten next year. He will still get the mornings and some afternoons at Cathy's, but will also have the preschool in addition.

I am making a resolution to update this blog more often in the new year, and will work hard to make this reality. Happy New Year from Logan and our Family!